What I Once Was?

By:Tina Glover/Unknownperson79



“What I Once Was?”



I am not the same person that 

I once was and after a lifetime 

of trying to be someone else 

that I am not and it has 

changed me only and why 

only me because of my 

diseased brain and why 

would I ever want it to be 

like this and what am I to

do now and how am I 

going to become the old 

me again without losing 

me while trying to find 

the old me and it’s all I 

ever wanted is to have 

the old me back but 

will it ever happen 

for me again as I 

continue to battle and 

search on to find the 

old me that I once was 

because that’s all I 

have ever really 

wanted for me because 

living a life with a 

diseased brain is my 

own personal prison 

of hell and torture that

I wish time and time 

again that I could 

wake the hell up from 



Because it’s not fun to be 

living with a diseased brain 

that leaves you feeling 

helpless and hopeless 

because of it’s 

malfunctions that 

keeps recurring day 

after day and night 

after night it’s a 

living breathing 

nightmare from 

hell 



(((See there’s so much that 

isn’t known yet about chiari 

malformation disease

because no doctor actually 

has got medical training in 

the field of chiari malformation

disease and so many young 

children that has chiari malformation 

disease leave’s them to where

some can not walk or have 

mobility to discover the world 

out there but they make the best 

of it and then young teens that 

does have it to and it’s leaving 

them hurting in pain even while

they try to go to school and then 

you know it would only take one 

or two good hits to the back of a 

chiarians head and neck to where it 

would kill them as my chiari 

malformation disease was 

handed to me while my mother

carried me in her womb during 

pregnancy and life for me and my 

brothers and sisters with Chiari 

Malformation Disease is hell on all 

chiarians and as we

mostly wish for our own 

deaths but we don’t rarely commit 

suicide unless depression and our 

disease becomes to much for one 

that has chiari)))***(((See pray 

for a cure because chiarians can 

use one right about now)))***

(((Because chiari malformation

 disease or EDS and other related 

issues to chiari takes the lives 

of so many people that you 

wouldn’t believe it but please 

research the disease because you could 

be someones support system to keep 

them going when they want to give 

up on life and thank you for letting me 

share about chiari and reading it and 

may God bless us all on our journeys 

where ever it make take us Amen)))




©Tina Glover All Rights Reserved January 7,2017–And not allowed to use any parts of my poems writing words thinking thoughts quotes stories without my consent and knowledge to do so and it’s greatly appreciated and thanks in advance y’all

Sharing this beautiful picture with y’all!!

Sharing for awareness for chiari/chiarians like myself we need a cure and surgery isn’t a cure it only helps with some or little pain and swelling not much more than that and that’s truly sad to say!!

Author Unknownperson79/Tina Glover might have to pause for a occasional headache and migraine headache on top of a regular headache and I might have to pause for occasional mini stroke and seizure due to chiari malformation disease which has no cure yet and is also my rare brain disease

January 7,2017 but posting here April 9,2017 

http://dreamilycleverlylover.tumblr.com

https://unknownperson79.wordpress.com

http://southerncharm69.wordpress.com

www.conquerchiari.org

#poem #short-poem #poetry #cure #me #chiari #rare #diseased #life #hell #sadness #pain #hurting-non-stop #blog #blogger #blogging #awareness #chronic #chronic-illnesses #chronic-sickness #God-Bless-Us-All-Amen 

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This entry was posted in awareness, Cure Chiari, Cure Me, daily life, death, Depressed/Depression, hurt, anger, miss understood, Insomnia, life, love, meme/quote, numbness/numb, Poems, poetry, quotes, reality, sadness, short poems, Truth, Uncategorized, writing, you on by .

About Southern Thang Now Jeff~Tina's Blog

HELLO I'M JEFF HER HUSBAND MY WIFE DOESN'T GET ON THIS SITE ANYMORE BECAUSE OF HER HEALTH AND RARE BRAIN DISEASE WILL NOT ALLOW HER TO DO YES I AM AND HAVE BEEN DOING THE POSTING AND COMMENTING BACK AND ON HER BLOG SO DON'T BE THINKING YOU ARE COMMUNICATING WITH HER BECAUSE YOU HAVE NOT BECAUSE IT'S BEEN NO ONE BUT ME OR OUR CHILDREN~~~~~~~~~~~~~ I am me and the best person I can be and also I love to write poetry and have published a book...But most importantly I am chiarian with a rare brain disease called Arnold Chiari Malformation Disease and it has no cure as of yet for more information on chiari visit link I'm providing you (www.conquerchiari.org) and each day is a struggle and battle with my chiari malformation disease but someone who has the guidance of God I will make it through to another day and another tomorrow and just remember that God loves you to and regardless be happy being you and don't change yourself for no one because you cannot please everyone so don't die trying to... And I love to write and share my works with y'all but sometimes my brain becomes confused and I make some mistakes but I surely will correct them and have a blessed day... {THIS BLOG HOLD'S PIECES THAT'S HUMOUROUS, FUNNY, SILLY, KILLER, MURDEROUS, LOVE ANIMALS, PICTURES, SENSE OF HUMOR PIECES, RED~NECK, CONFEDERACY STUFF, COUNTRY, DOWN HOME SOUTHERN GOODNESS, NATIVE AMERICANS STUFF AND CULTURE, ART WORK, LOVE, LIFE, CURE, INCURABLE DISEASES CHRONIC, ILLNESSES, INVISIBLE ILLNESSES, QUOTES, POEMS, POETRY} ~~~~{NO NON~SENSE WILL NOT BE TOLERATED OR FLIRTING AROUND WITH PEOPLE ON THIS SITE WILL NOT WORK BECAUSE I AM HAPPILY MARRIED AND SAME GOES FOR MY HUSBAND WHOM WRITES ON MY BLOG SO KEEP THE TONGUE CONCEALED AND KEEP THE DIRTY NASTY THINGS PICTURES WHATEVER CAN YOU SELF CUZ I DON'T WANT TO SEE THAT EITHER SO DON'T BE SENDING THAT TO MY PERSONAL EMAIL BECAUSE YOU'RE TOO MANY CRAZY PSYCHO PEOPLE OUT HERE THE DON'T MIND HARASSING AND THREATENING YOU OR YOUR FAMILY BECAUSE THESE SITES YOU CAN REPORT THEM BUT THEY'RE STILL KEEP COMING BACK YOU CAN'T EVEN BLOCK THEM SO THAT'S THE REASON WHY I'M ADDING THIS AGAIN AS MY ABOUT ME SO PLEASE DO UNDERSTAND I'M NOT TRYING TO OFFEND ANYONE}~~~~{BUT LET ME ADD ALSO THAT THE SEPTEMBER IS AWARENESS MONTH FOR CHIARI THE COLOR IS PURPLE FOR RIBBON AND CLOTHING WE HOLD WALKS ACROSS AMERICA EACH YEAR TO TRY TO RAISE MONEY UP FOR FINDING TO FURTHER THE RESEARCH ON FOR CURE BECAUSE THERE'S TOO MANY PEOPLE WITH CHIARI OR STUFF THAT IS RELATED TO CHIARI THAT IS DYING WITHOUT THE DOCTORS KNOWING WHY THEY JUST RULE IT OUT AS CHIARI SO PLEASE FEEL FREE AND LEARN ABOUT CHIARI BECAUSE IT'S A DAMAGING THING THAT MOST PEOPLE HAVE BUT THEY DON'T KNOW THEY HAVE IT THEY CAN BE A CARRIER THEIR WHOLE LIFE AND NOT SHOW NO SYMPTOMS OR SIGNS BUT NOT CONTRACT AND ON THE WAY THEY CAN FIND IT IS BY CT SCAN OR MRI SCAN BUT THERE'D HAVE TO BE SPECIFICALLY LOOKING FOR CHIARI NOT UNLESS IT WAS YOU KNOW THAT BAD AND IT SHOWS UP BUT THERE'S I THINK FOUR TYPES OF CHIARI TYPE 1, 2, 3, 4 JUST REMEMBER THAT A CHIARI AND LIFE IS NEVER THE SAME WE DON'T FEEL THE SAME SYMPTOMS WE DON'T FEEL THE SAME PAINS OR PAINS OR DIFFERENT OR SICKNESSES DIFFERENT EVEN THOUGH IT'S THE SAME DISEASE IT AFFECTS EVERYBODY IN DIFFERENT WAYS AS WE ALL RAISE AWARENESS THROUGHOUT THE YEAR NOT ONLY IN SEPTEMBER BUT THE WHOLE YEAR BECAUSE WE NEED TO CURE JUST LIKE OTHER DISEASES THEY NEED CURES SO THAT'S MY QUEST IN MY THING THAT I'M TRYING TO CONQUER IS TRYING TO HELP FIND A CURE FOR CHIARI SO HOPEFULLY MAYBE ONE DAY THAT THAT WILL HAPPEN BECAUSE IT IS HEREDITARY AND FAMILIES THEY JUST RELEASED A FEW YEARS AGO FROM THE MAYO CLINIC AND DUKE UNIVERSITY FROM WHERE THEY WAS DOING RESEARCH AND IT PROVIDES THE RESEARCH THAT IT IS HEREDITARY AND FAMILIES BECAUSE CHIARI WHEN YOU GET IT YOU GET IT FROM THE WOMB WHEN YOUR MOTHER IS PREGNANT WITH YOU INSIDE THE WOMB AND THEN THIS PASSED ON TO THE UNBORN FETUS THAT'S A LITTLE BIT ABOUT CHIARI AND ABOUT ME...... BAD OR NEGATIVE COMMENTS WILL NOT BE ALLOWED BECAUSE IT CAN CAUSE UNNEEDED STRESS CAUSING LOWER PART OF MY BRAIN TO SWELL AND COULD CAUSE IT TO IMPACT WITH MY BRAIN STEM KILLING ME DO PLEASE KEEP COMMENTS NICE THAT'S NOT TO MUCH TO ASK OF Y'ALL IT'S A SHAME THAT THIS SITE LETS SCAMMERS AND SEXUAL HARASSER PEOPLE STAY UP ON THIS SITE AND NOT DO ANYTHING AND YOU CAN'T EVEN BLOCK THE DEAL HOLES YOU HAVE TO PUT UP WITH IT ON THING TO DO IS PROJECTOR COMMENTS WHAT IS WRONG WITH THIS SITE AND THEN NOW HE'S INVADING MY LIFE AND EVADED MY WIFE'S PERSONAL LIFE AND THEN HE WANTS APOLOGETIC VIDEO FROM ME BECAUSE HE WANTS TO SAY IT SEE ME SAYING SORRY FOR YOU CUZ MY WIFE TO HAVE A MINI STROKE BECAUSE OF YOUR MESS BECAUSE YOU DIDN'T ASK WHO YOU WAS TALKING TO I PUT MY WIFE'S WRITING UP ON THIS BLOG BECAUSE SHE'S TOO SICK TO GET UP EACH DAY AND POST IT BUT SHE LOVES TO WRITE BUT SHE CAN'T WRITE AND FEELING LIKE SHE HER LIFE IS BEING INVADED AND SO WAS MINE AND THIS SITE NOT DOING ANYTHING ABOUT IT WE DON'T EVEN FEEL COMFORTABLE TO GET ONLINE ANYMORE WITHOUT THIS DOUCHEBAG INVADING OUR PERSONAL LIVES AND STEALING PICTURES OF MY WIFE AND THEN WANTING PICTURES OF ME WHAT KIND OF SICK PERSON IS SOCIETY WANTS A PICTURE OF YOUR WIFE'S HUSBAND WANTED NEEDS TO SEEK MENTAL EVALUATION HELP IT THROUGH A PSYCHIATRIST

6 thoughts on “What I Once Was?

  1. unchainedshadow

    Hello there! I noticed you were a loyal follower of my blog “Love with a Dark Heart in Chains.” As you may or may not have noticed I had a bit of drama attached to that blog and had to start anew. As one of my loyal readers I just wanted to let you know that I have a new blog in which I am starting over. Here it is: https://unchainedshadow.com/ God Bless and excellent post!

    Liked by 1 person

  2. unknownperson79 Post author

    Thank you Meenakshi Sethi and yes I am praying for a miracle and I hope one happens for me and all chiarians like me because arnold chiari malformation disease has no known cure yet and it’s where our brains are to big for our skull and pushes downwardly on the spine causing so much pain throughout the whole body but let me thank you for the get well soon wishes it’s greatly appreciated!

    Liked by 1 person

  3. Meenakshi Sethi

    I will include you and all suffering from this disease in my prayer from now on. I can’t even imagine pain you are going through. Just practice meditation and keep faith. I’m with you, whenever you need me.

    Liked by 1 person

  4. unknownperson79 Post author

    Thank you for the well needed prayers for me from now on and yes the pain is a struggle daily and yes it’s unbelievable painful but we push forward with our faith, hope and strength and courage and I am always here if you need me and your message touched my heart tonight you are a rare person to extend such kindness to a sick woman like myself and I will always keep you in my prayers as well and bless you!

    Liked by 1 person

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